ME Awareness Week 11-17 May 2015

ME Awareness week 11-17 May 2015

WAMES invites you to join them to spread the word online about ME & CFS this year:

  • Wear something blue (clothes, blue ribbon, wig etc)
  • Write a sign explaining e.g. I’m wearing blue to raise awareness of ME & CFS
  • Photo – take a selfie, holding the sign
  • Post your selfie on your FB and twitter #BeMEaware. Include us@WAMESMECFS so that we can retweet your support
  • Post on WAMES’ FB /WAMESMECFS, forums, blogs etc.
  • Like WAMES FB and share it.
  • Share the WAMES twibbon

http://twibbon.com/Support/spread-the-me-word-3

I'm Wearing Blue for ME

Key facts about ME in Wales:

  • ME is classified as a neurological condition, and is a multisystem disorder.
  • People can experience a wide range of debilitating symptoms, which can severely disrupt life, even causing them to become bed ridden.
  • The key characteristic is a post-exertional response i.e. the body reacts abnormally to mental and physical activity, causing an increase in symptoms or serious relapse some days later.
  • Over 12,000 people in Wales are thought to be affected.
  • It is difficult to get an accurate, timely diagnosis and management advice.
  • The Health Minister told Health Boards to develop services and a pathway in 2011.
  • WAG formed a Task & Finish Group in 2013 to give specific guidance to Health Boards on how to start developing a pathway and services.
  • During ME Awareness week 2015 WAG is launching an All Wales Implementation Group (with patient representation) to support Health Boards develop a pathway and services.
  • Hywel Dda is the only Health Board with a specialist ME consultant and ME services action plan.

The Welsh Association for ME & CFS Support (WAMES) provides information and campaigns for ME to be taken seriously. www.wames.org.uk helpline 029 2051 5061 helpline@wames.org.uk

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